What is Cystic Fibrosis?
Cystic Fibrosis is an autosomal recessive genetic disease affecting approximately 30,000 adults and children in the United States. This disease results in excessively thick mucus production, which in turn affects multiple organ systems and leads to life threatening lung infections and severe gastrointestinal problems. Cystic Fibrosis is progressive and eventually terminal.
Why is this important?
More than ever before, people with cystic fibrosis are living well into adulthood. UC San Diego’s Adult Cystic Fibrosis Clinic is working to identify and research solutions to problems that are specific to adults with CF. The adult CF program was established in 1995 with a patient population increasing to about 80 by 2005. Within the last 5 years the program has experienced tremendous growth, resulting in a current population of greater than 180 adults.
Persons with CF face many challenges. Efforts to minimize flare ups must be performed throughout the day and include oral and nebulized medications. Routine therapies for adults usually require 4-6 hours daily when well, and average 12-16 hours when ill. In addition to the many complications faced by people with CF and the time intensive therapies involved, the financial burden is tremendous. People with CF are frequently unable to work due to decreased pulmonary function, and the time commitment necessary to complete the daily treatment regimen. Approximately 45% of the patient population lives 2+ hours away from the medical center, creating significant challenges in the coordination of home health care providers and nursing care. Often time CF is considered a pre-existing condition, making insurance difficult to obtain.
We at Cause Ignitor would like to support this incredible team of people, who are working hard to make a difference in the quality of life for their patients. With the purchase of an awesome shirt, you will be raising awareness, and contributing toward the funding of the UC San Diego Adult Cystic Fibrosis Clinic. We encourage all of you Socially Aware Superstars to educate yourselves on this terrible disease, and to spread the word on how to make a difference!!!
Here are some great sites with loads of good information:
Sara’s Sizing Suggestions…..sss….
This month’s shirt and tank have a soft vintage feel. It runs true to size and has minimal shrinkage after the first wash. Ladies who want a longer, more boxy fit will enjoy the men’s cut the best. The tank runs closer to “Women’s” sizing so it is a bit snug.
Click Here for size chart and specifications